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| AM | |
| 8:00 - 8:10 | Welcome and Announcements, Nicole Baumer, MD, MEd |
| 8:15 - 9:15 | Evaluation, Treatment, and Support for Patients with Down Syndrome and Alzheimer's Disease, Caroline Bregman, LICSW; Amanda Laezza, RD, LDN; Dominica Nichols, RD, LDN, PhD; Nicolas Oreskovic, MD, MPH; Stephanie Santoro, MD; Brian Skotko, MD, MPP |
| 9:20 - 10:20 | Women's Health and Down Syndrome: A Case-Based Discussion of Similarities and Differences in Care, Hannah Graham, MD |
| 10:20 - 10:30 | Break |
| 10:30 - 12:00 | Neurodevelopmental Approach for a Successful Clinic Visit, Jennifer Harris, MSE; Allison Meyer, PhD; Lina Patel, PsyD |
| PM | |
| 12:00 - 1:15 | Lunch and Poster Viewing |
| 1:20 - 1:30 | NDSC Update |
| 1:35 - 2:20 | The Interferonopathy of Down Syndrome, Kelly Sullivan, PhD |
| 2:25 - 3:25 | Keep Moving: Utilizing a Movement System Approach to Help Those with Down Syndrome Stay Active and Healthy, Helen Milligan, PT, DPT, PCS; Mary Pipan, MD |
| 3:25 - 3:35 | Break |
| 3:35 - 4:05 | NIH Update: Cohorts, Collaboration, and Community: Shaping the Future of Down Syndrome Research |
| 4:10 - 4:40 | Lightning Round:
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| 4:45 - 5:45 | Practice Changing Articles - Update in the Medical Literature, Peter Bulova, MD; Kishore Vellody, MD |
| 5:50 - 6:00 | Closing Announcements, Maria Stanley, MD, FAAP |
Additional Activities
Thursday, July 24, 2025
The Thursday activities are not accredited for continuing education credit.
9:00 - 11:00 AM: Board Meeting
3:00 - 4:00 PM: Clinic Support Committee; Leader: Mary Stephens, MD, MPH, FAAFP, FAADM
This meeting, previously for Clinic Coordinators only, is now for any Down syndrome clinic staff member (new or seasoned) interested in receiving guidance and/or support for clinic development, management, or operations. During this meeting, attendees will learn about updates on the clinic support section of the DSMIG website, and then share needs and challenges, program ideas, and success stories.
4:00 - 5:00 PM Project ECHO; Brian Chicoine, MD; Noemi Spinazzi, MD
A 2021 study estimated that only 5% of adults with Down syndrome in the United States have access to a specialty clinic for adults with Down syndrome. While a comparable study of pediatric Down syndrome specialty clinics has not been conducted, the experiences of many DSMIG-USA members suggest that there is also inadequate access to pediatric Down syndrome clinics. In an effort to improve the medical care of individuals with Down syndrome who do not have access to a clinic and to support their healthcare providers, DSMIG-USA developed Down Syndrome Project ECHO in 2023. This presentation will provide a mock session of a Project ECHO meeting and demonstrate how an expert panel and other participants discuss and respond to a presentation by a healthcare provider seeking assistance with medical care for a person with Down syndrome.
5:00 - 6:00 PM: Top Posters
6:00 - 7:00 PM: Member Meeting
Join your peers as we gather to celebrate the important programs that impacted DSMIG-USA since last year's meeting. Reports will be shared from committees, workgroups, and officers.
7:15 - 9:00 PM Welcome Reception
Don't miss the chance to connect and engage with DSMIG members! Enjoy an evening of delicious hors d'oeuvres and refreshing drinks as you reconnect with fellow attendees in a relaxed and informal atmosphere.
Saturday, July 26, 2025
The Saturday workgroups are offering continuing education credit (MOC credit will not be offered).
7:30 - 9:30 AM Adolescent and Adult Health Workgroup; Leaders: George Capone, MD; Mary Stephens, MD, MPH, FAAFP, FAADM
This workgroup will provide an update on the Adult Healthcare Projects currently underway (medical literature reviews, MH/Regression, dementia screening, weight-lifestyle management, and CME activities). Group discussion, Q&A are planned.
9:45 - 11:45 AM DS-ASD Workgroup; Leaders: Lina Patel, PsyD; Noemi Spinazzi, MD; Margaret Froehlke, RN, BSN
This workgroup will include discussions on what has been learned about DS-ASD in the past year, how to apply that learning to improving the quality of care for individuals with co-occurring Down syndrome and autism spectrum disorder, and what needs to be learned in the next year to advance our understanding of how best to serve the needs of these individuals and their families. A summary and updates regarding ongoing projects will be given in addition to applicable information for use within a clinical setting.
2025 Submissions for Poster Presentations
You must register if you are planning to display a poster. This year we are thrilled to announce that Posters will be physically displayed in-person again and there will be live Poster Viewing!
Submit an Abstract/Poster Here
YOU MAY WISH TO CONSIDER SUBMITTING:
- Original clinical research findings
- A case presentation that is particularly instructive
- An informational poster about a new program initiative or update
- An Adult health review. For a recap of how to get your Poster started, check out the recording from 2023. Although the dates are different this year, the process remains the same:
ABSTRACT SUBMISSIONS
Submissions are due at Noon ET on Monday, April 21, 2025. If you are interested in submitting an abstract/poster you will need to submit the following:
- Abstract Limit 250 words
- Abstracts should be attached as a Word document
- Title your Word file as: Abstract DSMIG 2025 "2-3 word title", last name - of corresponding author
- Provide full names of all authors, and corresponding author names
The Poster Review Team will review and send acceptance by May 19, 2025. Top Poster submissions will be notified by June 30, 2025.
If your Abstract is selected, in addition to printing and bringing your physical poster to the Symposium, you will also be required to submit your poster as an ePoster PowerPoint slide AND an accompanying 2-3 minute Video Poster Presentation. These will both be due by noon on Monday, June 16, 2025. Please make this recording using Zoom. We are asking that you please keep your video ON during the recording, so that viewers can see you and your poster/poster slides. A link to a tutorial on how to make the recording can be found here.
During the poster viewing times, we expect you to be at your poster and available to answer questions.
Symposium Scholarships
The goal of the DSMIG-USA Scholarship Program is to provide financial assistance to recipients to attend the DSMIG-USA Annual Symposium. The number of scholarships awarded each year will depend on available funding. There are two scholarship categories available: Rising Star Scholarship and Financial Aid Scholarships. The deadline for Rising Star Scholarship applications is March 21. The deadline for Financial Need Scholarship applications is June 27. Learn more and apply today using the link below!
2025 Scholarships
Annual Symposium Support Opportunities
Your support matters to DSMIG-USA! Organizations that support the DSMIG-USA Annual Symposium highlight their support for the optimal health care and wellness of individuals with Down syndrome across the lifespan. Your support will help us achieve our goals to: Educate professionals and trainees on the latest research and comprehensive care regarding Down syndrome; facilitate a network of health professionals caring for individuals with Down syndrome; Support the development f Down syndrome clinics; and identify and disseminate the best practices of care.
Support Opportunities
2024 Annual Symposium Recap
CLICK HERE TO VIEW THE 2024 POSTER GALLERY
